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Speaker Details

Matt Hammond Father of Loie Hammond and Patient Advocate The Calliope Joy Foundation


Matt and his wife, Lauren, are parents to Loie, who was diagnosed with a very rare fatal genetic disease, known as metachromatic leukodystrophy, or MLD on Christmas Eve 2012. She would not live to see her fourth birthday and passed away on January 27th, 2014.

 

After Loie’s passing, Matt connected with Maria Kefalas and her late husband Pat Carr, who also had a daughter (Calliope) with MLD, and together they helped create the first nationwide Leukodystrophy Center of Excellence at CHOP and the Loie Hammond Memorial Lectureship, an annual program to bring researchers and clinicians up to date on progress in MLD. Through their ongoing efforts, the families continue to raise awareness and hundreds of thousands of dollars through fundraising events.

 

Matt, is a civil engineer and Executive Vice President of TPD, Inc.  Matt resides in Downingtown, PA.   together with his wife Lauren, and son Owen.

Speaker Sessions

Wednesday, September 18 2024
03:45 PM - 04:30 PM
Patient Advocacy Spotlight